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Australia’s Forgotten Children: The Silent Struggle of Childhood Dementia

Childhood dementia is a heartbreaking and often overlooked condition affecting over 2,300 children in Australia. These young lives are tragically marked by progressive neurological decline, robbing them of their ability to walk, talk, and eventually, even recognize loved ones.

Recently, the SBS has reported on the emotional toll this condition takes on families, as they watch their children slowly slip away. The lack of research funding and public awareness only adds to the struggle. Families, doctors, and advocates are calling for more attention to this devastating disease, emphasizing the need for early diagnosis and better support systems.

The heartbreaking reality is that for many families, there is no cure—only the knowledge that time is running out. As a community, it’s crucial that we push for more awareness, support, and research funding so that no family has to face this journey alone.

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Key Points

  • Childhood dementia is a “devastating and hopeless” diagnosis because there is no cure, says the Childhood Dementia Initiative (CDI).
  • Sarah Matthews knows she will have to watch her three-year-old daughter Charlotte “waste away”.
  • The CDI is calling on the government for funding to enhance research into treatments and better support families.

Little Heroes Foundation is proud to be on the forefront of creating awareness for Childhood Dementia and raising funds for much needed research. Your support makes the biggest difference. To continue to support us, donate via the link – https://www.littleheroesfoundation.com.au/donate/

 

Image used is Sarah Matthews and her young daughter Charlotte, who has childhood dementia. Source: Supplied